PRESS RELEASE FOR IMMEDIATE RELEASE Contact: Dan Sperry, Founder Chalkbird Inc. info@chalkbirdinc.org (833) 567-7275 CHALKBIRD.ORG The 1985 Pontiac that started a movement will be remembered for the conversations it started and the lives those conversations may have saved Hewitt NJ — Chalkbird Inc., a 501(c)(3) nonprofit dedicated to awareness, education, and research for Vascular Ehlers-Danlos Syndrome (VEDS), announced today that the Chalkbird Firebird, the organization's s

We're thrilled to share some exciting updates about Chalkbird's recent activities and future plans! Car Show Circuit: We've hit the gas on raising awareness, attending over 10 car shows! Attending these car shows not only generated excitement, but also led to a heartwarming $1,000 so far in cash donations to support our mission. Sparking Curiosity at Schools: The Chalkbird car brought smiles to the faces of children at a local elementary school. Their creativity and enthusia

Our Board Chair spent a weekend with 20 other people affected by Aortic Aneurysms, Dissections, and ruptures as part of the Aorta Advocate program launched by the John Ritter Foundation for Aortic Health (JRF). The weekend was intense, with people sharing their stories. Some people share stories of their strengths and how they have overcome life with Aortic Dissection and aneurysms. In contrast, others shared their heart-wrenching stories of loss from their Husbands, wives, a

Our board chair traveled to Washington, DC, in July to attend the Rare Disease Legislative Advocate brief with the Rare Disease Caucus. We learned much about the impact of the Inflation Reduction Act (IRA) signed into law in 2022, and its effect on the Orphan Drug Act 1983. The Inflation Reduction Act of 2022 (IRA) could be harmful to the Orphan Drug Act because it could discourage the development of new orphan drugs. The IRA allows Medicare to negotiate the prices of prescr