About Us

Chalkbird Inc. is a 501(c)(3) nonprofit organization dedicated to raising awareness, supporting families, and advancing research for Vascular Ehlers-Danlos Syndrome (VEDS) and other Heritable Disorders of Connective Tissue (HDCTs).

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Our story began with one family’s fight, and a commitment to make sure no one faces VEDS alone. After founder Dan Sperry and his son were diagnosed with VEDS, it became clear how urgently the world needs better awareness, faster diagnosis, better emergency response, and more research. Chalkbird Inc. was created to meet that need.

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Today, Chalkbird Inc. empowers communities through year-round events, educational programs for EMS and medical providers, and fundraising initiatives that directly support VEDS research efforts.

 

Our goal is simple:
Save lives through awareness, education, and innovation.

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Our Vision

A world where people with VEDS receive early diagnosis, expert care, and life-saving emergency response, and where research leads to longer, healthier lives for everyone facing HDCTs.

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Why We Exist

VEDS is rare, misunderstood, and often misdiagnosed. Many patients face emergency situations where every second matters. We believe that:

• Education can save lives.

• Research can change futures.

• Community can drive real impact.

Chalkbird Inc. stands at the intersection of all three.

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Join Us

Whether you’re attending an event, donating, volunteering, or spreading awareness, you’re helping create real change for families navigating VEDS. Together, we can bring hope, improve outcomes, and support the breakthroughs that patients desperately need.